Checked Out

Josie had a technically successful EEG last night.  She was wired from 4 pm till 10 am and had around 25 seizures during that time so that should give the neurologist plenty to work with.  Having said that, the neurologist called saying that there was "a lot" of activity on the scan and she felt the best way to decipher it would be to come in and talk with her.  We weren't actually expecting to get in (trust me, we were hoping) but she double booked us with a patient who has flaked in the past.  So we are headed to see her on Friday (which is good because apparently she's the ONLY pediatric neurologist in the area AND she works part time AND she's taking the month of December off.  Perfect storm?).  

It's great that we got in but fairly frustrating as the EEG was set up with a video monitor and a seizure button which the tech told me to press anytime I saw Josie have a seizure.  She said, even if it was a minute after the seizure (as you can imagine, I jump for the child, not the button, when seeing a seizure) that the mark on the scan would allow them to narrow in on the hours of information rather than taking longer to read it.  Anyhow, the neurologist said "you're pressing the button and I don't know what for."  Super.  So she's increasing Josie's meds to the highest dose for her weight and we'll discuss the plan moving forward on Friday.  Although the neuro has already put out the disclaimer that "she'll still have to go and think about it" after the appointment before doing anything.  I think she'll go back and read the EEG.  Ugh, ugh, ugh.

Also in our research, Jake's office has come in handy yet again.  Turns out one of his coworkers mom works at a private hospital here in town and did some calling around for us to find out who the best to see is etc.  It was reassuring (although frustrating) to hear we are seeing the right person and on the right track.  We just want someone to fix it!