We are back from our first appointment with the pediatric neurologist. Everything went well. We actually met with a group of 6 people: 1 pediatric registrar, 2 researchers, 1 Pediatric neurologist and 2 5th year medical students. So the girls had plenty of audience members to entertain during our 2 hour appointment. :)
The doctor had us give her a full background as well as quizzed us about the seizures and family history. She educated us about epilepsy and let us know what our life would look like in the coming months. She gave Josie an additional medication which we will start tonight. We'll start lowering the dose of her current medicine and hopefully wean her off of it in the next two months or so. All of this depends on the new drug actually working but we are taking it one step at a time.
The neurologist is going to reread the EEG on Monday now that she has a better understanding of Josie and then get back to us hopefully Monday afternoon. Josie managed to have 4 seizures while we were in the office which was helpful to the doctors.
Jake and I left the office having every single question we could think of answered which was such a relief. It's good knowing what could be coming and how much time we have to give things. Thanks to everyone for your calls and emails of support. We are hopeful.
The doctor had us give her a full background as well as quizzed us about the seizures and family history. She educated us about epilepsy and let us know what our life would look like in the coming months. She gave Josie an additional medication which we will start tonight. We'll start lowering the dose of her current medicine and hopefully wean her off of it in the next two months or so. All of this depends on the new drug actually working but we are taking it one step at a time.
The neurologist is going to reread the EEG on Monday now that she has a better understanding of Josie and then get back to us hopefully Monday afternoon. Josie managed to have 4 seizures while we were in the office which was helpful to the doctors.
Jake and I left the office having every single question we could think of answered which was such a relief. It's good knowing what could be coming and how much time we have to give things. Thanks to everyone for your calls and emails of support. We are hopeful.
Chins up and hopes high! We love you guys so much!!
Sorry to hear about what is going on.
It must feel good to get all those questions answered. Take care of yourselves too!
Koodo's to Sophie girl on her first day of kindy!!! She's so Brave!! Keep strong and positive. You are a beautiful family and have abeautiful life ahead of you. I love and miss you so much.