Happy New Year!

Good Days

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I don't know why I feel this way but I am almost hesitant to post this good news.  Josie has only had 1 visible seizure in the last two days!!  I am elated!  I want to spin her around and bake her cupcakes and celebrate.  

We did do some celebrating of another kind today.  Josie got to wear her new helmet in the kitchen.  Josie hasn't been allowed to walk unassisted in our kitchen since October due to the fact that it's tile and too dangerous should she have a drop seizure.  I had forgotten how much time she used spend in the cabinets and drawers.  She basically ran from drawer to drawer checking out all the equipment.  She pulled all of the tupperware out of the cabinet and "made a cake".  She even ran into the counter with her new helmet and thought it was the funniest thing and kept laughing and laughing.  I stood there with my back to her for the first time in a long time, listening to her bustling with the tupperware and it felt like my feet were floating.  I wanted to dance.  It was absolute bliss being in the kitchen with her and with out most of the anxiety that usually comes along.  

I want to type here that I know it probably isn't forever and that maybe it's a fluke but you know what, I hope it is over and that we have many more carefree times in the kitchen together ahead of us.  I love you Josieaphine!

2 Comments

ooops, sorry about that blank comment...

how have things been going since this post? Hopefully this is a major, life-long victory, but even if it is just a small, 2 day victory, it does give a lot of hope!!!
hugs,
tiffani

This is the best news I've read all day. So happy for you guys, must feel to do something you enjoy without so much worry. Fingers crossed for you that this only continues with each day...

And love the photo of Daddy and Josie -too sweet for words :)

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This page contains a single entry by published on February 4, 2009 10:21 PM.

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