After nineteen blissful seizure-free days, I'm sad to report Josie had two drops this morning followed by a sudden sleepy spell. She was playing normally and then stood up, looked glassy-eyed and asked to be picked up. Brandie did, and within a minute or two she was fast asleep. Her color and breathing remained normal throughout the hour nap she wound up taking, and upon waking she was alert and in a good mood.
She's had five more drops since and has returned to the clouded, sometimes-agitated state she was in for the past four months. For every visible drop there appears to be a lot of "under the hood" activity that doesn't have a physical manifestation, but she just seems interrupted: her thoughts and conversations seem shorter, more abbreviated.
We're definitely disappointed, but grateful for the seizure-free time that she had and hopeful that her medication will be able to be adjusted to grant it to her again. The silver lining definitely seems to be that her epilepsy is treatable with medicine at all, as some 30% of cases are not. Our thanks again to everyone who has been praying for her and supporting us through this time, we appreciate it!
She's had five more drops since and has returned to the clouded, sometimes-agitated state she was in for the past four months. For every visible drop there appears to be a lot of "under the hood" activity that doesn't have a physical manifestation, but she just seems interrupted: her thoughts and conversations seem shorter, more abbreviated.
We're definitely disappointed, but grateful for the seizure-free time that she had and hopeful that her medication will be able to be adjusted to grant it to her again. The silver lining definitely seems to be that her epilepsy is treatable with medicine at all, as some 30% of cases are not. Our thanks again to everyone who has been praying for her and supporting us through this time, we appreciate it!
i'm so very heartbroken to read this news. as you said, though, 19 days of bliss was wonderful, and now you know it's possible. i'm so hopeful that all she needs is a bit of medicine tweaking. we're thinking of you all. take care of yourselves. love you guys!!!!