Just a quick update to let you know Josie is on her fourth week of Lamotrigine with no apparent reduction in her seizures yet (which was expected). She seems to be struggling more with absence seizures, which leave her unresponsive and quiet roughly a third of the time. Lately she has had an increase in drops again as well.
Also expected, the lamotrigine seems to bring out her frustrations more (not that she doesn't have a lot to be frustrated by!): she'll rage and pull her hair now following a seizure, where before she would have cried or just been upset. At the beach she will roar and throw sand endlessly, which hopefully is therapeutic for her.
Aside from these times of silence or rage she is a very happy little girl, prone to giggling and always up for making her sister (and us) laugh hysterically. The two of them together are definitely "trouble" in the best way: thank heaven for our little girls!
Sending you all great big hugs and wish we can all go to our respective beaches and throw sand and kick the waves and make Josie all better.