Josie Update: Seizure Freedom

We've been nervous to post this news because we fear the bad news so much that we don't want to share the good news.  We're screwed up.

We are very, very happy to announce that Josie has been seizure free for over two months now!!!!!!  There aren't enough exclamation marks to convey our excitement!!!!!  In further detail, she has only had 5 seizures in the last three months.  It's such a huge change from the days of 50+ per day. This wonderful improvement happened after we added a third medication, Lamictal and tweaked the dosages of her first two meds.  She is clear and has been developing in enormous leaps.  She still has some side effects from the medications like shakiness, aggravation, and possible small twitches at night while she sleeps.  

We see the neurologist at the end of August and will see what the plan is with her current medications.  Last time we spoke, she wanted to try to wean her off the first medication, Clobazam, as it is usually only good for short term treatment.  We're nervous about changing the "magic formula" in fear that her seizures will return.  We'll see.  

Thanks to everyone for your constant support.  Josie is a very loved little girl.