I am super stoked to announce that Josephine took her last dose of Clobazam yesterday!! After 16 weeks of weaning her 1 mg per day with no negative side effects or break through seizures, she is now on two medications rather than three.
To celebrate, we took the girls down to Frank Kitts Park for a bungy jump and gelato! Josie loved going high and at the very end of her time, the attendant asked if she'd like to go "Really high?", she agreed without hesitation. As she soared 20 feet in the air, I broke into a cold sweat. All I could hear was her delighted laughter ringing through the park. The child has no fear.
Thanks to everyone for supporting us through this. We are so lucky to have good news to share and hope the trend continues.
To celebrate, we took the girls down to Frank Kitts Park for a bungy jump and gelato! Josie loved going high and at the very end of her time, the attendant asked if she'd like to go "Really high?", she agreed without hesitation. As she soared 20 feet in the air, I broke into a cold sweat. All I could hear was her delighted laughter ringing through the park. The child has no fear.
Thanks to everyone for supporting us through this. We are so lucky to have good news to share and hope the trend continues.
sounds like a perfect day. so, so very happy for you all and especially miss josephine!!!!