November is epilepsy awareness month, which is helpful since we've been trying to learn everything we can about this new word in our lives! It's been quite a whirlwind but our thanks go out again to everyone who has helped us through this transition, from family & friends just holding us up to those who have shared their own personal stories.
Several people have expressed interest in knowing what Josie's going through, so we wanted to share a video about a little boy Josie's age who has nearly the same symptoms she has (so far minus the tonic-clonic or grand mal seizures but we learned today that it wouldn't be uncommon for her to have them):
Emmett's Story
Brandie & I both found it to be a very powerful, moving and informative video. I also added a new section to the left-sidebar with links that have good information about the disease.
Several people have expressed interest in knowing what Josie's going through, so we wanted to share a video about a little boy Josie's age who has nearly the same symptoms she has (so far minus the tonic-clonic or grand mal seizures but we learned today that it wouldn't be uncommon for her to have them):
Emmett's Story
Brandie & I both found it to be a very powerful, moving and informative video. I also added a new section to the left-sidebar with links that have good information about the disease.
so, i watched this on friday night and cried and cried!! mark was like, do you want to go see them? of course we do - we wish could be there for you guys. hang in there - and let me know if any airlines to NZ are united partners (we have tons of united miles). please let me know if you need anything. you are both such wonderful parents - the girls are very lucky!